But First, Miracles

I’m toning up my spiritual core. Much like, and for the same reason as, my body’s core. My physical life parallels my mental/emotional/psychological and spiritual life. They reflect one another, represent each other, and ultimately integrate into one.

I’ve gotten flabby. I’ve gotten lazy. I make progress and I take my foot of the gas a little. It’s human nature. A Doctor’s Opinion written in the early days of A.A. said that an alcoholic in recovery who relapses is no different than a heart attack patient being devout about changes to diet and exercise, only to waffle (pun intended) once their health and welfare no longer hangs delicately in the balance.

I was doin’ alright, I thought. I was getting by. But I was crossing the lines I had drawn for myself and it was putting me in some inner conflict. Once that scope showed my disease advancing, that was a wake-up call. And then my copy of A Course In Miracles, which I opened one morning on a whim, got wet. As the saying goes, “The heavens opened” and rained down upon it before I could rescue it. I put it in front of the fan to try and dry it out. The fan blowing on it opened it to random pages and I would catch glimpses of inspiration as I looked over at it and read it to myself. It gave me peace after reading a line or two. . . just like it always did. I would put it out in the sun to dry more, it would get rained on again, and the process would start all over.

This went on for days.

I can take a hint.

Much like someone walking by the windows of a gym and glancing in at the well-defined muscles of those pushing themselves through perspiration towards their goal, I started flexing my mind’s muscles and tightening up my spiritual core. For the same reasons why you’d work a body’s core: stability, strength, alignment.

So I have an anchor when the winds blow and the storms roll in–guaranteed just like the seasons. I will have sunny days and rainy ones. Calm times and turbulence. My core is my anchor keeping me steady and grounding me in my true self. Elizabeth Gilbert says in The Big Magic, “You can’t just go from bright moment to bright moment [as a writer], it’s how you hold yourself together during the creative process that matters.”

Crohn’s disease is where my body attacks itself over a perceived threat that isn’t there. My mind does the same. The call is coming from inside the house. And the solution is in there, too.

I can get distracted and pulled by events in the world and then blown off course as I busily try to handle the challenges all by myself. I’m spinning plates and juggling balls until I freak out–overwhelmed by ineffectiveness, exhausted from trying to control the uncontrollable. I surrender. I step back. I zoom out, as the observer, and regain perspective.

A spiritual guide once told me, “My problems come from looking through a microscope. My solution comes from using a telescope instead.” I have tested this repeatedly and it never fails.

“Of myself, I can do nothing,” Jesus said. “I do all things through Him Who created me.” Translates for me, trying to twist and turn things to satisfy my fragile ego leaves me frustrated and empty; using the power of creation, the Universe, the divine whole, plugs me into a power strip of energy that is out of this world. Beyond my measly 3% of brain capacity I’m employing to handle crisis after crisis.

I got a Christmas card years ago that I ended up framing–it spoke right to my heart. I’ve hung it for so many holiday seasons, I know it by heart.

Sometimes we see only the underside of the tapestry of life All knots and gnarls and missteps. But there is a Master Weaver who sees it from above. And He weaves according to a plan.

Every year I pull it out from the light blue Rubbermaid tub with the slightly darker blue lid marked “Christmas.” And every year I search my soul whilst scanning the past year, then whisper, that’s true.

That is the best definition of my God, my Higher Power, that I could give. I put faith in the plan, and I trust the Master Weaver. And I find peace whenever I remember that.

To be an empty vessel and let Love pour into me and overflow onto the world–that’s purpose. Why settle for a job, when you know you have a function. Who would fly with the wings of a sparrow, once you’ve felt lifted by the mighty wings of the eagle.

“You do not ask for too much,” A Course in Miracles asserts, “but far too little.” This book saved my life once. I could feel it doing it again. Not from death, but from apathy. From a lack of passion and connection.

‘The answer is always more spiritual growth,’ I heard on a tape or CD sometime from someone. A long time ago. I keep testing it, and it keeps proving itself to be true.

Any good guru will tell you , “Don’t believe what I say, try it. Apply it in your own mind and see what happens.”

Be like children, curious, inquistitive, trusting.

I know not everyone believes this. I am learning that most people don’t. I’m still shocked by that. It makes perfect sense to me.

Island Life

I love being on an island. The water, the tropical breezes. The warm nights. Salt water gives one buoyancy and I think the salt air does the same.

It’s a rainy day today, smoky and sultry wispy clouds above; thick cotton below forming shapes and landscapes. Beautiful but fleeting. The thunder rumbles, a reminder of the imminent threat that lurks–lest you forget and hang clothes on the line or go for a bike ride. Sounding like a hungry belly, will it feast where I am or pass me by for some other flavor. Palm fronds blow to and fro, brushing at my awning. “Take it in,” they warn, “before you lose it!” The waves roll and bare their white teeth before crashing under, only to be called to duty. Rising and rolling again and again.

The ones that make it to the beach lap at your feet. Asking to take all that doesn’t serve you, all that burdens you…and wash it out to sea. Never to be seen again. It’s a siren calling to the dark spots on your soul. It cleanses and lightens and brightens.

Storms form, pass and the sun shines again. Wild and crazy quick changes. Watching weather over water is like flying first class–everyone is on the same ride, but you have a better seat. Water enhances everything; rain rinses clean.

Those winds are the winds of change for me, pointing to tomorrow’s hitting of the proverbial road. I’m going to the mainland for two weeks. Off of this rock in the Caribbean. I haven’t booked anything. There’s plenty of spots and I think I keep hoping that something in the Keys opens up. But I’m also excited to go somewhere new. I get that giddy feeling in my chest when I think about moving. Sad to leave friends behind but looking forward to a change in scenery that always yields a change in perspective to go with it.

It’s exciting and it’s bittersweet. It’s weird and it’s wonderful. And I don’t know if I can really live any other way.

Special Delivery

I sit there, looking at the box. The box sits there, looking back at me. I know that’s not how medicine works, but here we are. As far as I can go.

Inside is the latest greatest thing that’s going to make me all better. It’s sliced bread. The microwave. Electricity. My hopes and dreams. I’ve been here before. All my faith into the snake oil they’re peddling, only to find it doesn’t work.

“I don’t even know why you’re on that (fill in the blank with the treatment du jour). It doesn’t even help.” I usually don’t need a doctor to tell me this; I’ve already figured it out on my own.

So, forgive me box, if I don’t do cartwheels and roll out the red carpet. I’ve had the rug pulled out too often. I usually give up for years then, returning to my alternative avenues to heal and manage. And if it does work, what of the side effects? Not fun, and some are the same as what the drug is meant to treat.

“Do you have any abdominal pain, weight changes or diarrhea?” the screener for the specialty pharmacy vets me.

“Yeah–those are all symptoms of Crohn’s disease.”

A brief pause. We move on.

“Are you comfortable giving yourself injections?”

Comfortable may be a strong word. I’m not comfortable going into the emergency room on an annual basis, and I’m really uncomfortable talking about surgery. But being the lesser of the evils, is still evil…

Let me not think of it like that. Let’s give it a chance and go into it with our head held high. It might really be as great as they say. Everyone else is doin it!

At least it gets shipped to me, so that makes it less limiting than I initially thought it would be. Prescriptions usually can’t cross state borders and I was wondering how I was going to move to a new state, get new insurance and find a new doctor all while my month’s supply of medicine was dwindling. This hopefully cuts through that. As long as I see a doctor once a year, it can be prescribed.

That means I need to be in either Wisconsin or Florida, where my body has already established a bond.

He’s A Mirage

A poser, image-maker, when you reach for him, ‘poof’ he vanishes. He can’t show up because he doesn’t know how, or if he does show up he doesn’t know how to express it. The elusive fart in the room, felt and smelled for a just a moment–lingering then leaving.

No one should settle for this. Don’t cheat yourself with the ‘take what you can get’ rhetoric. Or the ‘nobody’s perfect’ bullshit. All ways we betray ourselves, all designed to deny us our heart’s desire.

Let the mediocrity go. Halt the pushing, pulling, and prodding employed to cajole someone into changing, who has no intention of changing anyway. Someone wanting you doesn’t equate to them doing what it takes to have you. I wish it did. But it just doesn’t.

They have to do the work. And if they’re not doing the work, then what they say is nothing but used car salesman talk. Let them find another sucker.

If they come on strong–they aren’t. They’re weak amoebas, barnacles looking to attach and suck the life out of someone and you would be wise to step aside and let them walk on by.

If they come on strong, they fizzle out the same way. Quickly, forcefully, desperately, and the worst–selfishly. Being bankrupt, they steal; having little of their own, they must take pieces from others and stitch them together, forming a flimsy cloak to cover them until they can find another to feast upon. And the cycle continues.

Having nothing of their own, they have nothing to give. Nothing true or real anyways. They lie on the fly, while fully believing themselves. Like cotton candy. Sugar and hot air spinning around and building into something big; but once you bite into it, it dissolves.

These cotton candy people are particularly dangerous for me. I am a generous giver who, if not careful, will end up with no more than a pile of cardboard cones lying around.

The Day of the Scope

The day of the scope is only good compared to the day before (i.e. The Day of the Prep)–it sucks, but it sucks a little less.

The first thing I realize–the first of the sucks–is that I have to ask someone to come and pick me up when it’s all over. I hate asking for help, which may be an issue I need to work on, but I had this epiphany that it’s also that I don’t expect people to show up. And that’s an issue I’ve been working on for a very long time.

Then it’s the walk to the nurses’ station to check-in and the idea slowly sinking in that you can’t fix yourself. That my personal body needs something that I can’t give it and something that’s not natural. It’s been manufactured by a guy in a white coat and now this other guy in a white coat is going to tell you to take it and behold the miracle of medical science. It’s going to fix a list of things (maybe it will, maybe it won’t) and it’s got a long list of side effects (maybe you’ll get them, many you may not).

I’m shown to my room. My own room, which is a nice thing. They all have the same little tiles in the bathroom and always in dull, drab colors. The same gown awaits me on the bed, blue and white patterned and with the same snaps and open back, yet impossible to put on every time. I take off my jewelry and put it in a specimen cup. The same kind of specimen cup that I peed into for my pregnancy test yesterday.

“I don’t see your pregnancy test results in here,” the nurse is panic flipping though my chart. I take a sharp breath in. “It says here that you are still getting your period.”

“That’s right,” I say it cautiously; I don’t know why. I try to exhale but it’s like the air is holding on, bracing itself.

She finds it. Holding it up with a sigh of relief, “It’s negative!” (She thinks she’s relieved).

I exhale. I thought maybe this was going to be some big practical joke, to have cheated motherhood all these years only to have my uterus rise up at the last minute and yell “last call!” I’d had sex a few days before and although I usually use the ever controversial pull-out method, there was a little misunderstanding.

“Did you just come in me?”

“Yeah,” from the mouth resting in the curve of my neck, “I thought you were on your period. You said something about blood.”

“Not from there.” Good lord! And then, please God, no.

This was the second close call of my sex years. All in all, not bad.

Just before they put me under the doctor asks again, “So you’re not taking anything now?”

I shake my head ‘no’ but to answer fully, I have to remove the BDSM-type mouthpiece that he’ll feed a camera on a tube through to see into my throat and stomach (and hopefully figure out what brought me to the ER), “No, and I really like it that way.”

The nurse puts it back in place and the look in his eyes says that’s all about to change. Lights out. Fade to black.

And then bright lights, a warm blanket, murmurs under masks. They’ve all seen some things, but no one’s talking. I’m wheeled back to my room and I hear a nurse describing the same things to someone new as I pass by. It’s like being in the arrival and the departure lounge.

I don’t want to land. I want to keep hovering in Lala land, far above the reality that awaits me below. This scope isn’t going to tell me anything I don’t already know. I need a treatment that’s a heavy hitter if I want to avoid these annual visits to the emergency room.

It’s not good. But it’s not as bad as the first time either, when I awoke to ulcerated dashes being drawn throughout my digestive system.

I’m tethered now. I need him now. I can’t get the drug by myself. I never wanted anything to hold me–not a marriage, not a mortgage, but now this medicine…

“I was supposed to travel,” I say during my first office visit where we talk about options and invasive procedures. They can’t get even get me in for the procedure for a month because of the pandemic. And they’re adding a big Q-tip shoved up my nose as an additional preparation.

“What, for like a week?” He clarifies.

I smile to myself. The first time explaining is the best; it plays out differently every time. “No…for like….my life.”

Registration the day of the scope has a comic interlude as the scheduler ask for an address.

“Just don’t put anything,” I offer.

“I have to put something, or you’ll look homeless.”

“What’s wrong with that? Do you think people will judge me?” That’s curiosity speaking, not challenge.

“Nooo,” she’s thoughtful, “I just don’t think it’s accurate.”

“Well, according to the state of Florida, I am.”

I like being on the fringe. I have no problem with being free of permanency and busting all the stereotypes around it. You wouldn’t think I was homeless if you saw me, and that’s good. Good to stretch our limited definitions of things by being confronted with alternative information. And I enjoy playing my part in that.

Too bad they can’t attach photos from my Out My Front Door collection. I’ve been places that cost nothing and take your breath away. I can get my camper into spaces within minutes that would never support a whole house and would take months if it could. And then, that’d be it. Your one view, day after day, year after year.

No thank you. There’s too much beauty to find and explore, and too many adventures await and many cool people are out there to meet and expand with. No matter how gorgeous a place is, I still wouldn’t want to stay there. I’d still want more. Because I only found that place by leaving a different amazing place. There’s a newness that I relish.

Movement is like my heartbeat, and I’m probably going into arrhythmia if I’m limited; if I start needing injections every few weeks and we don’t have the national healthcare to carry me.

So, adding to the logistics of where I go and where I stay and how I get there is now, “how do I get my medicine?”

How can this be?